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Dee Harris's avatar

Thank you Dr T, for informing this Nana, with 4 grands under 2! I keep praying and sending research findings to my daughters. I have not been allowed to meet #3 born Oct 24, because She demanded ai be up to date on MY vax including shingles. Giving me a death sentence or life ending illness contributes nothing to my beloved grandchildren. She thinks me “ stubborn”, but I am informed. The Lord has His plans, I will wait on Him.

One of my dear friend’s has a now 24 year old who seized immediately after receiving gardasil here in Toledo. She was 11 and lives wheel chair bound, tpn. Her Mom writes to explain the horror.

Hannah has a severe form of POTS-- it's one of the initial s/sx she experienced.... syncope. She fell right off the exam table 15 seconds after they gave it to her. Then seizures-- sure couldn't walk out of the peds office for her 11 year 'Well check'.... we stayed in the peds office for 3 more hours-- gave her O2, she was diaphoresing in a manner I have never seen-- to this day. Dripping in sweat-- (literally) dripping.

It's the MCAS that's most scary, however, the 'inflammatory' Response is toxic. To this day... she takes IV benedryl 1000mg/day,

Have you ever had a dose of benedryl? Try 1000 mg-- IV!

She's often on EPI and Benedryl drips IV just trying to STOP the anaphylactic response... she blows up like a blow fish and we just can't stop the inflammation---

It's when they told us to never leave her alone.

Most will die from an anaphylactic episode bc they are difficult to 'rescue' - when your airway closes-- it closes. Even with a Trach you can swell around a trach.

It's this toxic overload of histamine that keeps her in the hospital for weeks to months at a time. (Longest in ICU at one time was 8 months and one day).

She can no longer eat. Needs TPN though her central line for survival. Has been like this for 4-5 years now.... but we are seeing the effects of this now, too. Not meant to live on forever. Rots your teeth, all the sugar raises your triglycerides till your organs begin to fail- her triglycerides are in the 450 range...

DANGER ZONE!

Yet- we put our hope in Him... and we are learning what FULL surrender really means.....

Mostly, trying to stay (genuinely) thankful for all the time we have with our Hannah and not the time that's been robbed or will be..... or bitter for the profound suffering she has and continues to endure. 🙏🙏🙏

He is a good, good Father.... and we trust Him.

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Brandon is not your bro's avatar

Thank you Dr. Tenpenny , yes it is disgusting.

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